Please sign my Guest Book

1/4/2013

LaDonna Hicks

1/4/2013 09:55:21 pm

brandon i found you through a face book page i follow. my grand daughter is a t18 kiddo she is also mosaic. u have lifted my heart so much. i was worried how long she could last on this earth. she has very few problems but u still worry. good to see u have made it this far. thank you. my favorite saying is "God is Good All the time. and u prove it. keep smiling

brandon

1/7/2013 07:13:01 am

Thankyou for your kind words .I agree with you about God .He is awesome!

Silvia Garcia

5/23/2017 10:34:10 pm

Thank you so much for being you! I have so much hope for my almost 1yr old Joshua born with t18 & 12... you're such an inspiration god bless you!

Angie Vanover link

1/5/2013 03:12:56 am

so inspiring! wishing you every happiness from Kalamazoo, MI! go you!!

Brandon

2/11/2013 03:26:38 am

Thank you for your kind wishes. I wish you all the best too.

Carmen Andruchow

1/6/2013 11:13:04 pm

I just think this is such a testament to God's love. You are beautifully and wonderfully made. You have a great strength and courage in you even to conceive and then produce a powerful site like this one. Thank you.

brandon

1/9/2013 07:40:13 am

Thank you so much . To God be the glory!!

BJB

1/7/2013 06:40:39 pm

Awesome web page Brandon!
Just finished surfing and it is amazing!
Can't wait to see your next posts on your blog!

Love you lots!

From cousin Blaine

brandon

1/9/2013 07:43:20 am

thank you so much. I hope to see you soon !

Mr. Muamar

1/8/2013 06:31:48 am

Well done, Its great website. I am glad to hear about that

Brandon

2/11/2013 03:25:40 am

Thanks Mr. Muamar. God is awesome.

Deeana

1/8/2013 10:04:59 am

I love your website! You did such a good job. It was fun to read and watch everything.
God has blessed you Brandon!!

Brandon

2/11/2013 03:24:39 am

THanks Deeana.I am glad you enjoyed it.

Judy Prins

1/9/2013 05:02:46 am

Thanks for sharing your story with everyone Brandon. You are amazing!

Brandon

2/11/2013 03:24:05 am

Thanks Mrs. Prins. God is good.

Carol Fowler

1/10/2013 03:17:28 am

Brandon,
You are an amazing young man! I feel I was truly blessed meeting you while working at the school. I know that whatever challenges life holds for you you will meet them head on.
Thank you for sharing your journey. Keep on inspiring others

brandon

2/11/2013 03:23:34 am

God bless you and I enjoyed your company too.

Mrs. Gregg

1/10/2013 08:37:42 am

You are an inspiration Brandon!

Brandon

2/11/2013 03:22:48 am

Thanks Mrs. Gregg.

Linda MacInnis

1/10/2013 09:48:36 am

Great job on your website! It is very informative. Brandon, you have always been a very beautiful boy but you have grown into an even more beautiful, inspirational young man. I have great faith that your future will be amazing!!!

Mrs.C.

1/11/2013 12:21:24 am

You are awesome! You are an inspiration. Thank you.

Brandon

2/11/2013 03:21:43 am

You are awesome too.

Nancy Klassen

1/11/2013 04:46:26 am

Just found your page through a friend on FB! Brandon, you are a joy and an inspiration! I pray that your testimony will be an encouragement to many, and that you will continue to grow in the grace and knowledge of Jesus!

brandon

2/11/2013 03:21:17 am

God bless you and thank you for your kind words.

Mrs. Ormsbee

1/12/2013 12:04:12 am

I just saw your link on another teacher's FB page and thought I would check it out.

Thank you for sharing your story. You are truly an inspiration!

Brandon

2/11/2013 03:20:03 am

I am so glad. Thank you so much.

Katherine H.

1/21/2013 06:34:10 am

Dear Brandon, from the first time my late great GSD Samantha and I babysat you, we knew you were something special. As you grew I knew the Lord was with reminding me of a beautiful angel. I still recall your first acting debut as baby Jesus....no crying he made. You have come a long way and God seems to have been with you every step. Keep up the wonderful work.

brandon

2/11/2013 03:19:18 am

Thank you so much and God bless you too.

Nicole

1/23/2013 01:56:16 am

Awesome website B! I know I can not always be there to support you in person in your many endeavors, but just know that I am so proud of you and all that you have accomplished. <3

brandon

2/11/2013 03:18:40 am

God bless you too, Nicole.

Trevor Bosma

1/23/2013 03:23:15 am

So proud of you little cousin! You are a fine young man! Be good for you mom and dad, and I will see you soon.

Love your big cousin Trev

Brandon

2/11/2013 03:18:11 am

i am always good and I'm the best kid in my family.

Brenda Marinkovich

2/4/2013 06:10:27 am

Brandon, you are incredible, as are your parents!
Thankyou for sharing your inspirational story of faith and love. We can all learn something from your journey!

Brandon

2/11/2013 03:17:34 am

Thank you to God be the glory!

Lorann Christian

2/12/2013 11:24:22 pm

WOW! Brandon,
This is a great Website. You have included a lot of interesting information about Trisomy 18 with a twist of humor. You are a VERY funny guy!
I have to say I am glad your parents decided to fight for you, because you are a wonderful person. I love your help on Tuesdays and the kids love you!

Jo-anne Maurice

2/21/2013 10:15:06 am

Hi Brandon.. I remember devouring EVERYTHING on your website when I first logged on.. I couldn't get enough of your story.. And, young man, YOU HAVE A STORY TO TELL. I love HOW you are sharing it as well.. with sincerity, truth and humor. Stay close to the One who made you and loves you with an EVERLASTING love. Life is an adventure and you are not alone. Hug your Mom for me OK..

brandon

2/22/2013 11:04:39 am

thank you so much for your kind words . I am thankful to God for everything he has done!

Quentin

2/28/2013 05:48:33 am

Brandon this website is just so awesome! You are such a blessing my friend and all the things God is doing in and through you are amazing. I love how you are using your story to inspire and bless other people. Thank you

brandon

4/18/2013 06:32:02 am

Thank you so much Quentin I am truly thankful that you are my friend .

casey

4/7/2013 10:42:47 pm

Brandon,

Your story is nothing short of amazing and it shows how amazing God is. You are such a blessing - continue to spread the word and share your story. God bless you and your family.

Brandon

4/18/2013 06:28:08 am

Thank you so much. I agree that God is truly amazing. I am thankful to him. God bless you too.

Sue Lily's Mum

4/17/2013 10:19:33 pm

Wow Brandon this is fantastic , what an amazing story My daughter is Lily who is T18 Mosaic too and will be 7 next month x x

Brandon

4/18/2013 06:43:29 am

I am glad that you liked it. How is Lily doing ?

Susan Roquet

5/14/2013 05:00:20 am

Brandon you're an inspiration! Keep advocating for all the Trisomy children! Never give up! Hugs to you and your family!

Brandon

5/23/2013 03:50:55 am

I will thank you so much!

Lisa Infinger-Quirk

5/21/2013 01:38:58 pm

Hi Brandon,
After reading your story I found that I had a huge smile in my heart. You are truly an amazing, inspirational, brave and handsome young man. Thank you for just being you. God Bless.

Brandon

5/23/2013 03:52:43 am

Thank you so much for your kind words. God bless you too .

becky

5/21/2013 05:49:49 pm

Hi there Brandon, I have been following the Prayer Warrior site for a couple months now and have seen so many new illnesses and wondered how do they do it? I believe God takes care of His own but so many babies with so much on them........your story, your families honesty and faith is soo refreshing. God has truly blessed you and the rest of us who are seeing you emerge with faith, love and courage, is so inspiring. I think, as old as I am, I am seeing maybe for the first time the true meaning of 'fearfully and wonderfully made'. Thank you for sharing.

Brandon

5/23/2013 03:55:44 am

I am just so thankful to God that he has blessed me and is able to use me to help others .

Amy Sanders

5/22/2013 08:10:23 am

Brandon, I found your story following another baby's story. You are a wonderful young man. Please keep telling your story so that more of these babies that are supposedly "incompatible with life" smh will have a chance a life.

Brandon

5/23/2013 03:57:44 am

thankyou I will keep telling people about God's story in my life .

Eliesa

5/23/2013 02:01:23 am

Brandon, your such an amazing guy! You love Jesus so much and you can only get through this with him! Keep following Jesus! It's amazing how god can work!

Brandon

5/23/2013 03:59:27 am

Thankyou so much Eliesa God bless you.

Amelia

5/31/2013 02:32:01 am

Brandon, be blessed and k now God has an amazing plan for you!!! What a blessing you were to me today. I needed to stumble across your blog and find you. Praying for you to continue your amazing journey.

Roxanne

6/4/2013 11:18:59 am

Brandon, I found your story on FB, I have been following Believe In Castan's story. And they had shared your page on theirs. Thank you for sharing your story with us. You are truly an amazing, inspirational, brave and handsome young man. Thank you for just being you. Love, Hugs & Prayers from our house to your. God Bless.

Lois link

7/16/2013 02:51:29 am

Hi Brandon, you are amazing!! I enjoyed looking at your site and seeing your story. Im glad to see you are a Christian too!! I am sure your mom and dad are so very proud of you. You are an inspiration!

Sam N. Sansalone link

7/25/2013 05:59:56 am

Keep inspiring us all, Brandon.

Well done, young man.

ida

8/4/2013 02:17:34 am

You are AWESOME, Never stop.

Sandra Sweeney

8/19/2013 03:34:46 pm

Great job Brandon. So proud of all your accomplishments. Looking forward to seeing you and your parents again soon. God Bless you on your Christian walk and journey in life. In Christ's love, Mrs. Sweeney

Linda

9/25/2013 08:56:21 am

I am so proud of how you are using your life's journey to advocate for those who have no voice. May the Lord bless you all the days of your life!

Geoff Langhorne link

10/23/2013 12:07:12 am

(Ahem, prePOSTerous, not proven, can't be medically established . . . show me the VIDEO aGAIN [said the imaginary doctor])

I don't know much about the medical condition called Trisomy 18 but YOUR condition seems better than most of ours, and is a triumph of your faith and outlook, Brandon.

Renate

12/30/2013 11:10:16 am

Thank you so much for your web site! I have a lovely baby boy. He has isochromosome 18 mosaic,(they are not sure about mosaic, but he don't have any big issues to deal with, so they believe he is mosaic.) He is very healthy. First the genetics recommended abortion, but after i got him they called him a miracle, and that is exactly what he is for us. I know there is a lot of discrimination with trisomy 18, but from the day we decided not to have an abortion, the local hospital has been fantastic supportive to us and our baby.

Chrissy

1/5/2014 09:46:35 am

You are amazing and so inspiring! Thank you for sharing your story and life!! :-)

In Christ.

Larry & Darlene Kobeluck

3/31/2014 12:48:52 pm

Hello Brandon- we saw you on TV this evening. We are cousins- which your mom can explain to you. We are so proud and honored to have such a beautiful young man such as you in our family. You are truly a gift from god. God Bless You

Keith Hearne link

6/25/2014 07:24:59 pm

You are perfect in God's eyes because God sees through the soul.

Hamidul

7/13/2014 05:34:00 pm

Inspiring (hamidulh13@hotmail.com)

Alysa Pipkin

7/22/2014 12:27:46 am

hi Brandon! you are truly a light! with everything you have gone through, you still love the lord! you are perfect in his eyes and don't let anyone tell you otherwise. I hope everything is going well! ill be praying for you!

Jackie

10/8/2014 09:11:19 pm

cool guestbook!

jackiechan5432@gmail.com

PATTI Christmas

10/15/2014 08:39:50 pm

Amazing. Brandon, you are truly an inspiration! Until my dear friends had their baby, Danny, I had never heard of Trisomy 18, like so many others.

My friends were also told that Danny was "incompatible with life". They never hesitated or faltered in their love or faith. Danny was born 09/29/14. He's still in the NICU, but is a fighter. Thank you and GOD Bless you for sharing your story!

Andrew Coleman

12/20/2014 07:21:01 am

You have a great testimony Brandon.

Eliani Schlieper

12/21/2014 11:16:32 am

Amazing, Brandon. You are trully a inspiration! God bless you and your wonderful family.

acheeta

12/29/2014 02:57:41 pm

Hi.
I had a son with full Trisomy 18, past away this September.
One of my friend found your site and I just started to read.

Just want to say "hi" from Japan!

M. Müller link

12/31/2014 01:53:13 am

I wish you all the best from chatting Berlin in Germany. Happy new Year!

Karen Tober

1/1/2015 10:11:11 am

You're an amazing young man with an amazing personality, sense of humor, wisdom, and insight. Thank you for sharing your story.

Trevor

1/23/2015 03:39:45 am

Brandon, my heart is warmed watching your life your quality life with your family and friends! It will be almost two years ago that my daughter Hailey Rayelle Saunders was born on January 27, 2013 - May 18, 2013. She was diagnosed FT13, but there is considerable debate about that now as the genetics test was not done correctly. Hailey was the best gift a dad could ever have! She proved the doctors wrong at every point they said she would not do. I wish I had known more about all the kiddos living quality lives back then so I could show the doctors at Royal University Hospital in Saskatoon, Sk. Canada that she was compatible with life. I love that you are showing and demonstrating to all people that they need to be kind, loving, with out prejudice and open minded about the individual person and what supports they needs to thrive instead of taking them away to have them pass away because they are thought not to be compatible with life. God Bless you and your family!

Trevor Ramey' mom

3/5/2015 11:12:50 pm

Hi Brandon, I'm not sure if this site is still active, but I wanted you to know that you are not alone out there. My son, Trevor, was also born with Mosaic Trisomy 18 and he will be turning 29 this June! He was diagnosed when he was 5 weeks old and in fact, they ran the test twice just to make sure, but Even though he had heart surgery at 8 weeks old, he thrives. Trevor graduated from high school, works, and has more friends than a movie star. An athlete in Special Olympics, he bowls, plays bocce and loves softball and track, and is a Global Messenger. He struggles with reading and money concepts, but that hasn't slowed him down. Our family would love to hear from you and your family:^)

Stephen

3/15/2015 04:13:26 am

I'm very happy I ran across your blog, so thank you for sharing Brandon. I'm a medical student in San Francisco and I am learning about trisomy 18, so it's great to be able to hear a more personal story behind something I'm studying. Many thanks, Stephen.

brandon

3/16/2015 04:32:40 am

Thanks! I am not sure if you received this information so I am passing it on to you.

Stephen (most recent-last commenter), may I please contact you further to your interest in "learning about trisomy 18" in your current studies? I am involved in a number of cases currently, of trisomy 18/13 children. Your curiosity, interest to study, and apparent youth may be of considerable interest to my network of medical advocates (doctors and others) who assist families with children dealing with these issues.

I can be reached at HelpForNewborns@gmail.com, or at 403.678.7921.

Sam N. Sansalone link

3/15/2015 08:30:53 am

Stephen (most recent-last commenter), may I please contact you further to your interest in "learning about trisomy 18" in your current studies? I am involved in a number of cases currently, of trisomy 18/13 children. Your curiosity, interest to study, and apparent youth may be of considerable interest to my network of medical advocates (doctors and others) who assist families with children dealing with these issues.

I can be reached at HelpForNewborns@gmail.com, or at 403.678.7921.

~ S. N. Sansalone

Jack Zapfel

3/17/2015 12:22:57 am

You're an inspiration! Keep being strong!

Monica Gartner link

4/8/2015 01:58:43 pm

I came across an article about the same genetic condition you have and found your site. Never give up Brandon. I also have a genetic disability (Osteogenesis Imperfecta) and the doctors told my parents to take me home and enjoy me while they can because I will not live to be a year old. Well God willing on June 3rd I will be celebrating my, now get this, 50th birthday! I'm in the process of publishing about about my life's journey and how God has helped me Overcome the Impossible. Keep praying and God will never leave you nor forsake you. After all he promised! :)

Evelina

5/8/2015 05:43:15 am

Dear Brandon,

I am a Swedish medical student in Poland, who came across your blog just now, while studying trisomy 18 and Google-ing around. I watched some of your videos and I must say - Wow. You are such an amazing guy. And you are absolutely correct - Doctors are not always right. Pretty much all info is based on studies on statistics, which do not always indicate the outcome for individual cases. I am happy you are proving everyone wrong. People like you make us look away from statistics and understand that sometimes - God has plans beyond our understanding.

I will keep you in my thoughts throughout my career (thinking about going into obstetrics), and I hope you live to be a hundred.

"As long as there is love, there is hope."

Blessings,

xoxo Evelina

Brandon

5/11/2015 12:08:05 pm

Evelina,
Thank you so much for your comment. You are going to make a great doctor. I am so happy that there are people like you in the world. God bless you!

Janet

5/15/2015 08:22:00 am

I am caregiver to my nephew who is 62 and has Mosaic T18. He is a miracle and a JOY!
Jan

Hope you can add this comment for me. He is actually fairly healthy and active

Cathleen

6/10/2015 08:24:01 am

Thank you so much for sharing your story Brandon, its so amazing. My son Jakob was born with t18 september 1 2014 and is now my sweet little angel. You've lifted my spirits with your story :) Thank you

Erica Davidson

9/30/2015 11:34:21 am

Brandon! You have touched my heart and inspired me! I have a 16 day old baby girl with T18. We are unsure of the type exactly, but we are thinking it may be Mosaic because she hasn't had any serious issues yet...heart and all major organs seem fine so far.

You are such a remarkable young man & although we do not know one another, I just want to say I'm so proud of you. Your perseverance & faith are so admirable. And you're right, the "incompatible with life" tag needs to be removed. There are children out there thriving with T18. Parents need to know that! They need to know that, although many children do not live, there are people like you out there. We had little hope for my sweet Nola Jane, but I thank God for you and placing your story before me.

God bless!

Cherie

1/27/2016 02:32:11 pm

Dear Brandon,
Thank you so much for your openness, honesty, care for others. I have a son with Mosaic Trisomy 18, he is 12 this week and started high school today here in Australia. I have spent his life unsure if he'd be here for high school, your story is my inspiration for hope for his future. I believe now that God has some big plans for him and that I will do my part in living positive because of your story. Thank you so much, you are a blessing. Cherie

Derek DEGRATE link

3/13/2016 02:08:17 pm

Great site, i wish you much success

kenny

5/25/2016 05:46:08 pm

hey brandon i'm a med student and i was looking up trisomy 18 and found your site and story. Thanks for helping me understand Edwards syndrome better

Natalie

6/26/2016 09:35:30 pm

Hi Brandon, I am a medical student in Australia and stumbled across your website whilst studying Trisomy 18. Just wanted to say thank you for helping me understand Trisomy 18 better, and congratulations on all of your achievements- you should be proud of everything you and your family have done especially when there has been bullying, and negativity (including from health professionals). I wish you continuing success and thank you for sharing your story on the internet, where people from all over the world can read it.

Natalie

6/26/2016 09:35:57 pm

Anne Wansink for Edmonton Prolife

2/7/2018 12:57:56 pm

wishing to get in touch with you, to include you in our prolife appreciation event.

Melinda Peraza

2/11/2018 05:31:53 am

You are so inspiring! Bless you for using your talents and showing the world that through God all things are possible!!!

Grace

4/12/2018 10:49:45 pm

Thank you Brandon for loving life and being an inspiration to others. May life be kind to you and happiness is found around every corner.

Jane Dobson

10/21/2018 12:44:35 pm

Hi Brandon
Thank you so much for your talk today at CPL conference.
You are so inspiring.
I have been a family doctor for 35 years but I had not met someone with T18 before.
I did not know what a wonderful life was possible.
You said your IQ tested at 58. I had not realized before this , what was possible —- you have opened my eyes.
Thanks again.

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