Cardiac Surgery in Infants with Trisomy 18 & 13 - Dr. Hammel

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Shared Decision Making for T13/18
http://jamanetwork.com/journals/jamapediatrics/article-abstract/2601236

Marty McCaffrey - Radio

Broadcast

Trisomy 13 & 18 -Selecting the Road Previously not Taken
www.everylifecounts.ie/am-site/media/trisomy-13-and-18-selecting-the-road-previously-not-taken.pdf

Survival and Surgical Interventions for Children with Trisomy 13 and 18
www.sickkids.ca/AboutSickKids/Newsroom/Past-News/2016/study-sheds-light-survival-children-trisomy-13-18.html

Trisomy 13 and 18: When a lethal condition is no longer lethal
www.calgaryherald.com/health/severe+birth+defects+lethal+docs+once+said+study/12084143/story.html

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Important Cardiac / Surgery Links and Summaries  Link

Sharing with Free2BeYOUth  Link

I am blessed to have been chosen to be one of 20 kids to attend the Vimy Ridge Canadian Pilgrimage Tour in Europe.  Link

An article by a doctor  talking about Mosaic Trisomy kids
Seriously, Dr. Yount??? Link
John Yount,MD says:
11 November 2013 at 12:53

. ..and at best among those surviving only some degree of personality development and self recognition with no documented capacity to achieve the status of 90% the individuals limited by Down’s Syndrome.
http://neonatalresearch.org/2013/11/05/preterm-babies-are-human-beings-too/
John Yount says:
9 November 2013 at 13:31
…. Some infants with Trisomy 18 mosaicism have manifest some very limited degree of personality development. The oldest surviving persons with the condition have reached the second decade of life while tube fed, unresponsively bedridden and recurrently treated for infections.

My reply

Hi Doctor Yount! I would like to speak up for the kids with Trisomy 18. I am 16 years old and have Mosaic Trisomy 18, and I do have a voice. By the way I have a personality too and right now I don’t want to tell you how I am feeling! You say that Trisomy kids aren’t like 90 % of the Downs Syndrome kids. I am not a doctor but just like there are lots of Down Syndrome kids with different strengths and weaknesses there are lots of Trisomy 18 kids with lots of different strengths and weaknesses too. Our geneticist adviced my mom to have an abortion because of statistics. There is a little girl from where I am from who also has Trisomy 18. The only thing wrong with her is her heart and she can’t get an operation for it because she has Trisomy18 and doctors are saying she won’t survive it. That’s kind of like lying to the parents because lots of kids do survive the heart operation. I think that if parents come to you for advice you should show them both sides of the story and treat each kid individually 

Should Disabled Children be Murdered?   Link

Thanks to Renee for this nice  article that was written about me by "Beyond the Crayon."

Post Abortion on Babies with Disabilities    This is a shocking article on killing babies with disabilities

Cardiac Surgery in Trisomy 18 Patients  Link

Appearance of Medical Care is not enough Link

Medical Interventions for Trisomy Children  Link

Annie and Barb Farlow  Link

Genetic Discrimination